Women's magazine award goes to rare-disease activist

Ljubljana, 4 March - Špela Miroševič, the founder and chairman of a rare-disease foundation, is the winner of this year's Ona 365 award, which is presented by the women's magazine OnaPlus. Miroševič has dedicated her life to finding a cure for the CTNNB1 syndrome, an extremely rare genetic neurodevelopmental disorder that her son suffers from.