Over EUR 2m raised for kid with CTNNB1 syndrome
Ljubljana, 28 June - A total of EUR 168,000 was raised at a benefit concert in Ljubljana on Tuesday to help a 4-year-old boy with a congenital CTNNB1 gene mutation. The event wrapped up a campaign that achieved its goal by raising more than EUR 2 million for the development of a gene therapy programme for CTNNB1 syndrome.
Ljubljana
A benefit concert to raise money for Urban, a 4-year-old boy with a congenital CTNNB1 gene mutation.
Photo: Katja Kodba/STA
Ljubljana
A benefit concert to raise money for Urban, a 4-year-old boy with a congenital CTNNB1 gene mutation.
Photo: Katja Kodba/STA
Ljubljana
A benefit concert to raise money for Urban, a 4-year-old boy with a congenital CTNNB1 gene mutation.
Photo: Katja Kodba/STA
Ljubljana
A benefit concert to raise money for Urban, a 4-year-old boy with a congenital CTNNB1 gene mutation.
Photo: Katja Kodba/STA
Ljubljana
National Assembly President Urška Klakočar Zupančič attends a benefit concert to raise money for Urban, a 4-year-old boy with a congenital CTNNB1 gene mutation.
Photo: Katja Kodba/STA
Ljubljana
A benefit concert to raise money for Urban, a 4-year-old boy with a congenital CTNNB1 gene mutation.
Photo: Katja Kodba/STA
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